So where do we go from here?

Well, honestly we don't know yet. We do know that because of his aortic stenosis that he will continue to be monitered 2-3 times a year to make sure that it is not progressing more. Chances are though that it will and he will have to have heart surgery to repair it. His next ekg is in June. I think that it will be more advanced than it was the first time. He now sweats often when I nurse him.
We continue to read material online and have talked with another family who's 1 year old daughter has Williams. Some times I get encouraged by what I hear and see and sometimes it is difficult to picture our future.
Right now we have no choice but to wait and see what Jaxon's capabilities will be. Will he function on the low or the high side of the spectrum? I take encouragement from the early intervention that we will be able to work with him during some of the critical developmental stages and that it might make a difference in his outcome.
Alex and I decided that we weren't going to put limits on his capabilities. We will let Jax show us what he can and can't do. If we went into this with preconceived notions than that's all he would ever be. Internet articles and other peoples experiences.
We hope to do the best for our little guy. We know the road will be bumpy but the journey will be worth it.